Tag Archives: life

I have Wolff- Parkinson- White Syndrome (WPW)

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I have Wolff- Parkinson- White Syndrome (WPW)

Last summer, I learned that that I have a rare syndrome called WPW (Wolff-Parkinson-White).  In summary, I have an extra pathway in my heart that allows the electric current to circulate in my heart.  It causes rapid heartbeats.  The problem with this condition is that the extra path does not have a mechanism to stop palpitations, and very rarely that can be fatal.  After 4 people on my paternal side suddenly passed away from heart diseases, I did not want to take my chances and decided to opt for an ablation this summer.

~Dealing with love ones ~

Preparing for the procedure was nerve wrecking.  Between calls to l my health insurance to make sure the procedure would be covered, calls to my wellness coach to make sure I have support, and doctor’s appointments to keep an eye on me; I had to deal my mother and my “best friend”.  Once I picked the date for my surgery I told my boyfriend, my mother and my best friend.  

My mom drove me nuts.  At first, she connected me with her cousin who is also a cardiologist.  It was very helpful, he guided me and still checks up on me. One week before the surgery, my mom calls me to tell me that she is opposed to the surgery because she had not yet consulted her spiritual guide. She needs to first contact the universe and see what they have in store for me. I respect my mom’s beliefs; she is a highly spiritual and superstitious person.  However, one week prior to the surgery is not the time to have doubts.  She had known about the surgery date for 2 months! Then, she required once again more explanation and insisted on calling my procedure an EKG test. My mom was visiting me during the month of the procedure. I had told her I wanted her to be by my side.  However, a few days beforehand she left me to stay with my brother who lives about 2 hours away from me.  Nonetheless, she told me that if I really wanted her to come and stay with me during recovery she could make the sacrifice and come up to stay with me. To which I responded: “no need for you to sacrifice yourself, I will be fine”. She ended up coming because her cousin guilt her into staying with me.  However, the day after I came back from the hospital she left to stay with my brother.

My ‘best friend” knew about the surgery and had said that she would come to stay with me.  Honestly, I did not want her to come because she is very narcissistic.  It is always about her and for her; everything should and need to revolve around her. Not once had she ever asked me how I am doing since I told her about my heart conditions.  I did not want to deal with her while recovering.  She knew about the surgery.  However, she did not remember (or did not care…) and later on, she accused me of not keeping her updated about my health (that is her reason for not coming to stay with me).

~ The Procedure ~

My procedure was to be done in two steps.  First step, the electrophysiology (EP) study was the physician will attempt to recreate the symptoms and pinpoint the extra path.  The second step is to perform the ablation.  

The day before the procedure, the hospital called me three times to reschedule which created much anxiety for me. The day of, I went there bright and early; the staff was lovely and answered my list of questions.  I went in and came out about 5 hours later.  The doctor had only done the EP study.  The extra pathway in my heart is near the AV node and with modern technology there is a 90% chance that there will be complications and necessitate the use of a pacemaker.  I should attempt the surgery at a later age according to my electro-cardiologist.  I am grateful that the doctor did not continue with the procedure, because I had told him that I was opposed to a pacemaker unless it is utterly indispensable.  However, I am a bit sad that I had to undergo all that stress and yet nothing is fixed.

~Now~

The first few days after the procedure were painful and worrisome.  But now I feel better, I am back to my pre-surgery symptoms; which is normal for me.  The doctors will keep an eye on me. I also need to learn how to make my health a priority.

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When you miss your family but they are being jerks at the moment

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Since Thanksgiving my relationship with my family has been a bit strenuous.  The main culprit was my sister, but because no family member publicly sided with me or even told her that it was not a way to deal with family members, I took it as they also shared her feelings towards my Significant Other (S.O.).  This feeling has caused me to distance myself from everyone.  If you have a relationship with my family, then I stay away from you.  The disadvantage is that most of my friends are somewhat connected to my family.  It is easier to hang out with acquaintances now, but sometimes they ask about my niece or my sister and I close up.  I do not know how to explain to people that I am ashamed of them at the moment.  I love them, but I want them far away from me.  I am also afraid that people will assume that I am a bad person because my family treats me badly.  Why would you treat someone dear to you badly unless they are bad people?  I miss my family, but for the moment we do not talk.  I am afraid that the disconnect that we are experiencing now will affect our friendship.  I wish I had a guide to navigate that situation.

New Year- No resolutions whatsoever

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The new year started 3 days ago, and I still have no concrete idea of what I want from 2017.  Of course, I want to be healthy, have a job, and have a place to live but besides that I have no clue what I want from this year or from my life (to be honest).

2016 has been challenging. Not only for me, but for women, Muslims, immigrants, transgenders, LGBTQ, and people with compassion in their hearts.  For me it has been a year of learning about myself and also about my loved ones.  I have always been a tolerant person, happy-go-merry, easy-going, non-confrontational, and accommodating person.  I am a perfect example of a middle child. I grew up feeling that my older and younger siblings get all the attention (and still feel that way).  They are the most looked after; my parents still provide for them. Also because I am financially stable and more resourceful than them, I always felt guilty of my luck and did my best to assist, support and provide for them.  I also wanted and expected the reciprocal; the love, the attention, the care. Nonetheless, because I always put them first, I forgot about myself, my expectations, my feelings, my standards.  I lost myself in the cause, and I did not see how self-destructive that behavior would turn out to be.  Helping my siblings became the only goal. I would anticipate their needs, and I would jump as soon they said they needed me.  I would drop friends, lovers, myself to run out to them.  This was the way I lived my life.  I allowed them to feel entitled to everything I own.  However, summer of 2016 after a nervous breakdown, I realized how I let everyone dictate my life.  I saw the extent of my “humanitarian” actions.

I always drew satisfaction from knowing that my siblings and friends needed me.  I treated my friends the same as my siblings.  It gave me purpose.  It also filled my days, I never made time for myself.  I was not big on self-care.  I was always the giver, and I received little in return. I always wanted to be surrounded by people because I believed that charisma was a sign of success.  Therefore, in order to have an entourage, I  would agree to and accommodate to everyone’s requests.  Having people around would validate me; it would say to the world that I am a great person.  Additionally, attending a Catholic school enforced the idea that I was a sinner, that I was bad, but that I could redeem myself if I was a good Samaritan. I forgot however, that life is about balance, if I give and do not get something in return, I will empty out….  Then, sometime during the summer of 2016, I realized that I was empty.  I had no idea who I was, what I wanted, what brought me joy, or even how I made it that far in life without an identity. I allowed people to define me; what they say in me was what I was. I just did not realized that I was denying myself a chance at happiness.

Lately, because I will no longer accept to be a doormat, my friends and family are rebelling against me.  They call me names, they insult me, they marginalize me, they manipulate and abuse me.  They are testing me.  Life is testing me.  Nonetheless, I recognize that I need to figure myself out and grow a backbone.  I need to stand up for myself and allow my true self to be revealed. I need to stop seeking validation from friends and family.  I want to be happy. I deserve to be happy.  I should do things because I want to, not because that is what is expected from me.  I think that the universe is removing these people from my life, and it is a painful experience.  I wasted years on ungrateful people. My life is mine, and I choose to be happy .